Tuesday, May 15, 2007
Bummer
Ok - this will be my "what a bummer" post. Went to the muscular dystrophy doctor this past Friday with the full knowledge that the lower-leg braces I got in October were clearly not what my physical condition needed and I would either need to have some sort of "adjustment" made to them or to get the traditional ones. The doctor took one look at my legs and the divot, that's between the size of an apple and a baseball, on the front of each of my shins (caused by the braces) and said the braces have GOT to go. I'm glad. They have been nothing but a pain in the fanny. When I walk, the calf strap slides down my calf, or it pulls the sock down so I've got the lovely velcro backing loufaing my calves. Bright side is - I don't have to shave my legs so often since it's constantly ripping the hairs out ................ 1 hair at a time. OUCH! He's (the doc that is)determined that the sensation in my legs have taken a pretty severe beating. Figured that out when he was poking my feet and legs with a needle and it felt like he was barely doing it until.....he hit my knee and I got the full pressure of someone trying to cram a needle into my knee cap! My leg jumped a mile and the needle flew across the room - making us all laugh........well, except for Katie and Zach-whose eyes got big as saucers. He apologized to the kids and let them know he wasn't trying to hurt me, just to find out where mommy could feel and not feel. He was shocked at my level of deterioration in the 5 1/2 months since I'd been there. Of course, we couldn't get through the visit without the routine question as to what I'm doing about my weight. This time he was a little more forceful - he suggested he send in the Nutrionist so she could help me work out a plan. With it being Friday at 4:30 before Mother's Day - she was gone - darn it all!!! LOL! They did make sure to let me know that she will be calling me this week to schedule a time though..............great. "So, I'm fat - anything else you need to tell me doc?" Yep, you need to meet with the Physical Therapist to get some contraptions ordered to help me "cope" with my rapidly advancing condition with my hands. Apparently they are expecting me to lose the ability to dress myself as they have suggested zipper pulls, button-helpers (which I've needed for a while) and several other things. Great - well, at least I'll be able to zip my pants and button my shirts so the neighbors won't be frightened by my pot belly and saggy boobs! LOL! "Uh, I can see it in your eyes - you aren't done right?" I said to the doc. Of course not! The next question had to deal with my home and lifestyle. After talking about the various things I do and the number of trips up/down the stairs chasing a 3 and 5 year old, he told me that it's time to move out of the 2-story and get in a 1-story........before the end of the year. Oh fun - time to move again - oh yippee. On the bright side, at least I've never gotten around to unpacking the china and crystal! Oh well, a 1-story would be nice and Mike and I sure have hated going up and down those stairs 40 times a day. And if this wasn't fun enough, I get to go every 3 months now so they can track what's going on - guess that's not such a bad thing come to think of it! So to recap, my disease is progressing rapidly, I have to lose 35 pounds, I get to have some fun gadgets to play with (keep the mind out of the gutter here), I get to have my legs put into molding clay to make new braces (guess I'd better make sure I shave REALLY well prior to that) and figure it won't be sexy like Demi Moore and Patrick Swazey in the movie "Ghost", and I get to go buy a new house. No problem............LOL
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